The Eden Dora Trust was set up by a mum 11 years ago after her daughter got Encephalitis – an inflammation or swelling of the brain, caused by a virus, an infection, or an autoimmune response that anyone can get, at any time.
Encephalitis is a life-altering condition that can severely impact the lives of children and their families. The Eden Dora Trust was founded to offer support to children and their families affected by Encephalitis and subsequent childhood Acquired Brain Injuries (ABI) through support, information, education, and research. They understand first-hand the devastating impact that Encephalitis/ABI can have on the lives of those affected.
Their primary focus is on providing services that help children and their families through their difficult journey. They offer support in hospitals, schools, communities, with families after hospital discharge, and raising awareness and funding research into the causes, diagnoses, and treatments of Encephalitis/ABI.
They empower educators to understand the different needs of children with Acquired Brain Injuries in schools. Offering and funding professional workshops, study days, and extensive information to provide support to all concerned.
Eden Dora Trust have an extensive and knowledgeable advisory panel and offer a personal helpline for anyone who needs individualised support and guidance.
They provide a lifeline for so many children and families who feel isolated, different, misunderstood, and alone after the diagnoses of Encephalitis and ABI. They work tirelessly to ensure that everyone receives the support they need to get through the challenging times ahead.
In summary, the charity provides a range of services and resources to support children and families affected by Encephalitis and ABI. They advocate for increased awareness, fund research and provide support and education to families, professionals, and educators.